Infos du site

Titre :

European Porphyria Initiative

Url :

http://www.porphyria-europe.com

Catégorie :

Santé et bien être    Maladies    Génétiques   

Description :

The mission of the European Porphyria Initiative (EPI) is to present an up to date approach to the understanding of porphyria, focusing in particular on the prevention and treatment of acute attacks, to provide information and support to families affected by porphyria, and to support and encourage medical research

Mots clés :

Porphyria, Porphyrie, Porphyrin, Heme, Hemin, Hematin,
Normosang, PBG, ALA, Variegate, Coproporphyria,
Protoporphyria, AIP, Acute attack, Red urine, Abdominal
pain, Skin lesions, EPI, Hepatic porphyria